This is the fifth in a series of posts about people in our community who have experienced the gift of chosenness. This one is offered by Randy Henning, father of Matthew, who I consider to be a spiritual leader among us. Read on:
My wife Laura and I have two children, Ashlyn and Matthew. Our oldest, Ashlyn, lives in Waco, Texas. Matthew lives with us. Both our children are gifts from God. This story is about Matthew’s life and our church.
Matthew has Down Syndrome. The clinical name for it is Trisomy 21. Simply put, that means that instead of having two “number twenty-one” chromosomes, Matthew has three. I think it is amazing that the thing that makes Matthew different is so small you have to use a microscope to see it. But that tiny difference is profound. Raising a child with Down Syndrome has its challenges, but I can tell you without question that the good far outweighs the bad.
The most important thing to us is watching Matthew grow up in a church family. Watching his faith grow, hearing people say how much he has helped them. That has been priceless. I do not know the extent to which Matthew understands his faith, but what I do know is that he has faith and that God uses him in ways I cannot comprehend. His faith and how he uses it is obviously something pretty special between him and God. Matthew knows himself to be chosen, and it shows.
Before we started attending Mosaic, we didn’t attend church. What led us to start looking? I remember it like it was yesterday. One Sunday morning, my daughter Ashlyn (ten years old at the time) came up to me and asked, “Daddy, why don’t we go to church?” Wham! That question coming from a ten-year-old hit me like a two-by-four.
So we started looking.
For families of individuals with special needs, finding a church can be complicated. Studies say that about 90% of families like ours don’t attend church. Why? Some of us don’t want to burden a system that isn’t prepared for us. Sometimes we feel unwelcome. Many of us have been told that a church can’t serve us or meet the needs of our child. As a result, the special needs population is the most unreached, unevangelized people group in this country.
For us, it was easy to find a church that would let Matt sit in a pew or chair. But to find one that would let Matt participate? Not as easy as you might think. Then a reading tutor shared with us that her church had a desire to serve all individuals, including those with special needs. One Sunday, we visited. Thirteen years later, we’re still there.
I can honestly say that both our kids would not be who they are today without the people of Mosaic. You don’t know what it means to us that they let Matt be Matt. They let him worship how he feels led, even if that means taking a lap around the church or standing up front during worship. Matt has built relationships within the church. He feels welcomed to join in prayer with leaders (often, they ask him to lead those prayers). He finds his pastor every Sunday morning for a hug, and he always asks her to mark his Bible with the verse for the day’s message. Matthew has even been invited to serve communion. Matt has grown in his faith his way, and I’ll be honest … I wish my faith and relationship with the Lord was as strong as his.
Matt’s faith bears fruit. One of Matt’s teachers shared with us that on a day when her son was scheduled for a driving test, she was anxious and Matt responded not only with concern but with faith. He gave her a note that said, “Be happy. God loves you, and I love you, too.” He then proceeded to lay hands on her and prayed over her right in the middle of class! If he’d not had an accepting church family that let him grow in his faith, that may not have ever happened.
Another time, a student at Matt’s school shared with my wife that she was in the lunch room one day when some friends started to make fun of Matt. She spoke up to her friends and said, “You know, I go to church with Matthew and he’s a pretty cool kid. You should get to know him better.” That’s the fruit of authentic community. Made me proud of my church. If it takes a village to raise a child, our church has been our village.
As parents of a special needs child we want the same thing for our kids as other parents do. We want a place where they are welcome, safe, and accepted for who they are. The difference is, its a lot harder to find for us and you can’t imagine what a great gift it is when we do find that place. This month, our church will open its doors to a new ministry that offers therapy sessions for kids with special needs during the week. In August, we’re adding a once-a-month family night out for families with exceptional kids. We’re calling it Exceptional Circles.
One night a month for two or three hours might not sound like much to a typical family, but to a parent of a special needs child that can almost feel like a miracle. I’ll be honest: Matt is easy. We could leave him with just about anybody and he’s fine (most of the time he’d rather us not be there anyway!). But there are parents out there who never get a break. You can’t imagine what a gift a couple of hours a month can be. I know some parents that have taken advantage of something like this and you know what they did? They went home and slept.
Having a place like Mosaic, and ministry like Exceptional Circles could be a real blessing to a family with children with special needs. A place where they are not only welcome but accepted for who they are. We want everyone to have the blessing of a community like ours to share the load and offer Christ. For us, it has made all the difference.